Disruptive Innovation: My Health, My Choices

Paul will discuss BC's effort towards the vision of eHealth: Heathcare information is accessible when and where it is needed to support personal healthcare, healthcare decision making and sustainability. He will discuss eHealth, which focused on connecting healthcare systems and clinicians and systems. Paul will discuss what the province has learned from the first phase, recent engagement with stakeholders and citizens and how IM/IT will enable the next stage of business transformation.

About the Speaker: Paul Shrimpton was appointed Executive Director in the Ministry of Health in 2008, as the executive project lead on the ministry's major eHealth projects. As an innovator in the health system, Paul has transitioned into a new role in the ministry to work with Health Authorities and health organizations across the province to provide leadership over IT strategic planning, enterprise architecture and IT conformance.

In England there have been successful information services for patients and the public - in particular the NHS Choices website (www.nhs.uk) and the NHS Direct telephone service. From 2013 these services will be, for the first time, be integrated into a new multi-channel customer service platform driving transparency about services available, opportunities for patient feedback, and digital transactions.

About the speaker: Bob joined the Department of Health from NHS Direct where he was Director of New Media, responsible for the NHS Direct website and digital TV services. In his career, Bob has worked in healthcare libraries, NHS public affairs and as chief executive of a not-for-profit agency providing health information services. He has also been a writer and editor for the British Medical Association, and had a regular column, "What your patients are reading". in the British Medical Journal. Bob has served on a number of working parties and task forces, and was one of the 25 NHS leaders who signed the NHS Plan. He is Visiting Professor in health informatics at Plymouth University.

More than ever before people are starting to demand access to the latest knowledge, best practices, and trends on health, wellness and wellbeing. People want to feel empowered, optimal, embracing change. With the wide availability of real-enough-time access to information, they are realizing that tailored knowledge is still far from reality. Equipped with smartphones, activity trackers and other devices, a selected group of amateur "scientists" are now collecting, analyzing and sharing data systematically. This new field known as citizen science, crowd-science, crowdsource science or networked science, opens the doors to active public participation in global research and "social" behavioural modification. During his presentation, Carlos will share insights from his spinal cord injury recovery, experiences from others who are using communities and technologies to learn more about themselves, and "hacks" to optimize various aspects of our lives.

About the speaker: Carlos is a physician, medical futurist, patient activist, adventure sportsman, and advocate for personal healthcare, who also holds fellowships in Consumer Health Informatics and eHealth Innovation. As a result of a spectacular accident hang gliding in 2006, he became an expert in participatory and collaborative decision making models of patient care during life-threatening conditions. By tracking his spinal cord injury, retrieving his personal health information, and integrating it with the best available evidence from the Web, Carlos found answers not available on medical textbooks or expert medical minds, which enabled him to recover completely. Being a patient now defines everything Carlos does. He has ample experience in research, global health systems, new media, social and open innovation, online collaboration, internet startups and entrepreneurship.Carlos is the founder of Quantified Self Toronto and Changemaker-at-Large, Innovation Cell, Massey College, University of Toronto.

Pierre will discuss how genomics is enabling personalized medicine in Canada. He will discuss the hype, the hope and the reality and demonstrate how Genome Canada is approaching the personalized health paradigm from both a scientific and technological perspective as well as integrating economic issues, data storage, management and analysis components and the challenges that are inherent in systemic change.

About the speaker: Pierre was appointed to his current role Oct. 18, 2010. Prior to this, Dr. Meulien served as Chief Scientific Officer for Genome British Columbia from 2007 to 2010 where he promoted the organization's ongoing scientific strategy, focusing on the science of genomics, proteomics and bioinformatics within the larger realm of biotechnology and life sciences. Facilitating the translation of genome-based technologies into end user communities across many life science sectors was also a key responsibility. From 2002 to 2007, he served as the founding CEO of the Dublin Molecular Medicine Centre (now Molecular Medicine Ireland) which linked the three medical schools and six teaching hospitals in Dublin to build a critical mass in molecular medicine and translational research. The Centre managed the Euro 45 Million "Program for Human Genomics" financed by the Irish government and was responsible for coordinating the successful application for the first Wellcome Trust funded Clinical Research Centre to be set up in Ireland. For over 20 years, Dr. Meulien has managed expert research teams with a number of organizations, including Aventis Pasteur in Toronto (Senior Vice President of R&D), and in Lyon, France (Director of Research). He also spent seven years with the French biotechnology company Transgene in Strasbourg, France.

Innovations in health data systems are generally forging ahead without appropriate attention to patient privacy rights. This session will examine some of the discussions underway to re-conceptualize privacy and how they relate to the privacy imperative in health data systems.

About the speaker: Micheal is a lawyer and has been the Policy Director of the BCCLA since 2004. She has been an Adjunct Professor at the University of British Columbia (UBC) in the Faculty of Law and in the School of Library, Archival and Information Studies where she has taught civil liberties and information ethics. She is a regular guest instructor for UBC's College of Health Disciplines Interdisciplinary Elective in HIV/AIDS Care and was honoured as a recipient of the 2010 AccolAIDS award for social and political advocacy benefiting communities affected by HIV/AIDS. Micheal is a frequent speaker on a variety of civil liberties topics including privacy, national security, policing, surveillance and free speech. She is an Advisory Board Member of Privacy International.

The rising cost of healthcare demands innovative solutions to deliver better care at a lower cost - without compromising quality or access. Eric Gombrich will discuss how government, industry and academia are working together to drive innovative software solutions in the context of people-centered health. The NexJ Connected Wellness Platform is designed to empower people to proactively manage their own healthcare and wellness. It provides people with access to their health records and connects them with their extended care team, allowing them to work together to increase the quality of care, improve outcomes, and reduce the cost of care. NexJ Systems is a leading provider of innovative people-centered software solutions.

About the speaker:  Eric is responsible for the strategic direction and execution of NexJ System's activities and success in the healthcare industry. He has almost 30 years of experience in healthcare information technology and medical devices industries, having led organizations in their expansion efforts in the US, Canada, and around the world. Most recently serving as the CEO of EMIS Inc., the North American subsidiary of EMIS Limited, the UK's largest EMR vendor, Eric has been successful in commercially building markets as well as successfully managing companies through clinical trials, ISO certification, and regulatory submissions. His experience extends across the entire spectrum of healthcare, having worked with acute, ambulatory, and primary care organizations, as well as payer organizations and governments.